{"id":39928,"date":"2012-08-22T14:40:13","date_gmt":"2012-08-22T18:40:13","guid":{"rendered":"https:\/\/www.ucf.edu\/news\/?p=39928"},"modified":"2019-07-05T12:58:15","modified_gmt":"2019-07-05T16:58:15","slug":"we-meet-our-storytellers-where-they-are-not-where-they-have-been","status":"publish","type":"post","link":"https:\/\/www.ucf.edu\/news\/we-meet-our-storytellers-where-they-are-not-where-they-have-been\/","title":{"rendered":"‘We Meet Our Storytellers Where They Are, Not Where They Have Been.’"},"content":{"rendered":"

麻豆原创 English student Alice Spicer hopes one day there will be a new literary genre for the storytellers that inspire her: people with Alzheimer\u2019s and other dementia conditions.<\/p>\n

The 麻豆原创 senior meets regularly with Henry, Barbara, Christine and others at an Oviedo nursing home to meticulously transcribe their oral stories of emotion and adventure. Sometimes their yarns are light and lively, such as the Hula-Hooping woman who buys her clothes at a circus, but sometimes the stories bring Spicer to tears, such as the woman who told of letting go and dying by climbing onto bubbles and floating away.<\/p>\n

\u201cThis segment of society often is locked behind doors, but there\u2019s no reason they can\u2019t have opportunities to make a difference in the world,\u201d said Spicer, who is working on a creative-writing major with a minor in digital media. \u201cThey have a totally different way of seeing the world, which I think would appeal to the general public. We\u2019re so organized in our lives in a predictive way, this would touch our brains in a way we don\u2019t normally do.\u201d<\/p>\n

The story collection was started three years ago as a student service-learning project by Terry Thaxton, an associate professor of English whose Literary Arts Partnership at 麻豆原创 takes classroom concepts into the community to benefit others. Spicer, a student in one of Thaxton\u2019s classes last year, became so interested in working with people with mid- to late-stage dementia conditions that Thaxton turned the project over to her.<\/p>\n

\u201cShe\u2019s using creativity as a way to capture their imaginations,\u201d Thaxton said. \u201cWe\u2019re not focused on forcing them to remember things, but rather allowing their memories to become part of who they are at present. We\u2019re interested in celebrating who they are.\u201d<\/p>\n

Each week, Spicer takes a photo to Emeritus Care in Oviedo, where usually six to 10 residents in a group are given the opportunity to tell a story about what they see in the picture. The photo could be a pensive woman sitting at a table, a colorful apartment building, kids playing a game, or\u00a0a mannequin head.<\/p>\n

Spicer said she asks questions about the photos, but she never knows where the stories are headed in the next 30 to 60 minutes.<\/p>\n

\u201cThey\u2019re being original, there\u2019s not an internal sensor. A lot of times we have to tell them they\u2019re not lying just because they\u2019re making it up,\u201d she said. “This relieves the stress of accessing memory, which they have increasing difficulty to do.\u201d<\/p>\n

Nearly 100 collected stories have been posted on the project\u2019s website, http:\/\/writingfancy.blogspot.com\/<\/a>. The stories are not permitted to be used for commercial ventures and the project also is not intended to hold up the residents to undue exposure, Spicer said, but rather to provide them a way to connect.<\/p>\n

Many residents with dementia often spend their days sitting by themselves, staring at television or sleeping. \u201cEven at our workshop they may not remember their name or career or families, but in that moment they are a storyteller and that<\/em> is their identity. They embrace it and they love it,\u201d Spicer said.<\/p>\n

Denise LaSota, executive director at Emeritus, said she enjoys reading all of the residents\u2019 stories and has noticed that the contributors exhibit a brief emotional lift after the sessions.<\/p>\n

\u201cThey like the opportunity of reliving some of the things they\u2019re talking about,\u201d she said. \u201cThey like the opportunity to share.\u201d<\/p>\n

Some of the residents\u2019 families also are moved by the stories they read afterward, and often are able to identify which sentence or phrase their loved one contributed.<\/p>\n

This leads Spicer to surmise that writing projects like this may someday lead researchers to uncover some sort of \u201cemotional memory.\u201d<\/p>\n

\u201cThere\u2019s some kind of retention there that we just can\u2019t put a finger on,\u201d she said.<\/p>\n

Thaxton said the story collectors draw some conclusions in terms of creativity and imagination, but don\u2019t analyze the psychological aspects of the stories. The ultimate goal of the project, she said, is to allow the storytellers to feel validation rather than pressure to remember.<\/p>\n

\u201cWe meet our storytellers where they are, not where they have been.\u201d<\/p>\n

To read about \u201cMrs. Butler\u2019s Adventure into Animal World,\u201d \u201cMusic is the Best Medicine,\u201d \u201cA Cat and a Fish,\u201d \u201cDizzy, Dizzy, Dizzy,\u201d and dozens of other stories collected through the Literary Arts Partnership, go to <\/em>http:\/\/writingfancy.blogspot.com\/<\/em><\/a>.<\/em><\/p>\n

 <\/p>\n

 <\/p>\n

 <\/p>\n

 <\/p>\n

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